Ester Garne
AuthID: R-00F-RM1
1
TITLE: Ethics and legal requirements for data linkage in 14 European countries for children with congenital anomalies Full Text
AUTHORS: Claridge, Hugh; Tan, Joachim; Loane, Maria; Garne, Ester; Barisic, Ingeborg; Cavero Carbonell, Clara; Dias, Carlos; Gatt, Miriam; Jordan, Susan; Khoshnood, Babak; Kiuru Kuhlefelt, Sonja; Klungsoyr, Kari; Carollo, Olatz Mokoroa; Nelen, Vera; Neville, Amanda J.; Pierini, Anna; Randrianaivo, Hanitra; Rissmann, Anke; Tucker, David; de Walle, Hermien; ...More
PUBLISHED: 2023, SOURCE: BMJ OPEN, VOLUME: 13, ISSUE: 7
AUTHORS: Claridge, Hugh; Tan, Joachim; Loane, Maria; Garne, Ester; Barisic, Ingeborg; Cavero Carbonell, Clara; Dias, Carlos; Gatt, Miriam; Jordan, Susan; Khoshnood, Babak; Kiuru Kuhlefelt, Sonja; Klungsoyr, Kari; Carollo, Olatz Mokoroa; Nelen, Vera; Neville, Amanda J.; Pierini, Anna; Randrianaivo, Hanitra; Rissmann, Anke; Tucker, David; de Walle, Hermien; ...More
PUBLISHED: 2023, SOURCE: BMJ OPEN, VOLUME: 13, ISSUE: 7
INDEXED IN: 
Scopus 
WOS
Scopus WOS2
TITLE: Severe Congenital Heart Defects and Cerebral Palsy
AUTHORS: Garne, Ester; Goldsmith, Shona; Barisic, Ingeborg; Braz, Paula; Dakovic, Ivana; Gibson, Catherine; Hansen, Michele; Hoei Hansen, Christina E.; Hollung, Sandra Julsen; Klungsoyr, Kari; Smithers Sheedy, Hayley; Virella, Daniel; Badawi, Nadia; Watson, Linda; McIntyre, Sarah;
PUBLISHED: 2023, SOURCE: JOURNAL OF PEDIATRICS, VOLUME: 262
AUTHORS: Garne, Ester; Goldsmith, Shona; Barisic, Ingeborg; Braz, Paula; Dakovic, Ivana; Gibson, Catherine; Hansen, Michele; Hoei Hansen, Christina E.; Hollung, Sandra Julsen; Klungsoyr, Kari; Smithers Sheedy, Hayley; Virella, Daniel; Badawi, Nadia; Watson, Linda; McIntyre, Sarah;
PUBLISHED: 2023, SOURCE: JOURNAL OF PEDIATRICS, VOLUME: 262
INDEXED IN: Scopus WOS
Scopus WOS3
TITLE: COVID-19 and children with congenital anomalies: a European survey of parents' experiences of healthcare services Full Text
AUTHORS: Latos Bielenska, Anna; Marcus, Elena; Jamry Dziurla, Anna; Rankin, Judith; Barisic, Ingeborg; Cavero Carbonell, Clara; Den Hond, Elly; Garne, Ester; Genard, Lucas; Santos, Ana Joao; Lutke, L. Renee; Dias, Carlos Matias; Pedersen, Christina Neergaard; Neville, Amanda; Niemann, Annika; Odak, Ljubica; Paramo Rodriguez, Lucia; Pierini, Anna; Rissmann, Anke; Morris, Joan K.;
PUBLISHED: 2022, SOURCE: BMJ OPEN, VOLUME: 12, ISSUE: 7
AUTHORS: Latos Bielenska, Anna; Marcus, Elena; Jamry Dziurla, Anna; Rankin, Judith; Barisic, Ingeborg; Cavero Carbonell, Clara; Den Hond, Elly; Garne, Ester; Genard, Lucas; Santos, Ana Joao; Lutke, L. Renee; Dias, Carlos Matias; Pedersen, Christina Neergaard; Neville, Amanda; Niemann, Annika; Odak, Ljubica; Paramo Rodriguez, Lucia; Pierini, Anna; Rissmann, Anke; Morris, Joan K.;
PUBLISHED: 2022, SOURCE: BMJ OPEN, VOLUME: 12, ISSUE: 7
INDEXED IN: WOS
WOS4
TITLE: COVID-19 and children with congenital anomalies: a European survey of parents' experiences of healthcare services
AUTHORS: Latos Bieleńska, A; Marcus, E; Jamry Dziurla, A; Rankin, J; Barisic, I; Cavero Carbonell, C; Den Hond, E; Garne, E; Genard, L; João Santos, A; Lutke, LR; Matias Dias, C; Neergaard Pedersen, C; Neville, A; Niemann, A; Odak, L; Páramo Rodríguez, L; Pierini, A; Rissmann, A; Morris, JK;
PUBLISHED: 2022, SOURCE: BMJ Open, VOLUME: 12, ISSUE: 7
AUTHORS: Latos Bieleńska, A; Marcus, E; Jamry Dziurla, A; Rankin, J; Barisic, I; Cavero Carbonell, C; Den Hond, E; Garne, E; Genard, L; João Santos, A; Lutke, LR; Matias Dias, C; Neergaard Pedersen, C; Neville, A; Niemann, A; Odak, L; Páramo Rodríguez, L; Pierini, A; Rissmann, A; Morris, JK;
PUBLISHED: 2022, SOURCE: BMJ Open, VOLUME: 12, ISSUE: 7
INDEXED IN: Scopus
Scopus5
TITLE: Information needs of parents of children with congenital anomalies across Europe: a EUROlinkCAT survey Full Text
AUTHORS: Marcus, Elena; Latos Bielenska, Anna; Jamry Dziurla, Anna; Barisic, Ingeborg; Cavero Carbonell, Clara; Den Hond, Elly; Garne, Ester; Genard, Lucas; Santos, Ana Joao ; Lutke, LRenee; Dias, Carlos Matias; Pedersen, Christina Neergaard; Neville, Amanda J.; Niemann, Annika; Odak, Ljubica; Pierini, Anna; Rico, Juan; Rissmann, Anke; Rankin, Judith; Morris, Joan K.;
PUBLISHED: 2022, SOURCE: BMC PEDIATRICS, VOLUME: 22, ISSUE: 1
AUTHORS: Marcus, Elena; Latos Bielenska, Anna; Jamry Dziurla, Anna; Barisic, Ingeborg; Cavero Carbonell, Clara; Den Hond, Elly; Garne, Ester; Genard, Lucas; Santos, Ana Joao ; Lutke, LRenee; Dias, Carlos Matias; Pedersen, Christina Neergaard; Neville, Amanda J.; Niemann, Annika; Odak, Ljubica; Pierini, Anna; Rico, Juan; Rissmann, Anke; Rankin, Judith; Morris, Joan K.;
PUBLISHED: 2022, SOURCE: BMC PEDIATRICS, VOLUME: 22, ISSUE: 1
INDEXED IN: Scopus WOS
Scopus WOS6
TITLE: Prevalence of vascular disruption anomalies and association with young maternal age: A EUROCAT study to compare the United Kingdom with other European countries
AUTHORS: Morris, Joan K.; Wellesley, Diana; Limb, Elizabeth; Bergman, Jorieke E. H.; Kinsner Ovaskainen, Agnieszka; Addor, Marie Claude; Broughan, Jennifer M.; Cavero Carbonell, Clara; Dias, Carlos M.; Echevarria Gonzalez de Garibay, Luis Javier; Gatt, Miriam; Haeusler, Martin; Barisic, Ingeborg; Klungsoyr, Kari; Lelong, Nathalie; Materna Kiryluk, Anna; Neville, Amanda; Nelen, Vera; O'Mahony, Mary T.; Perthus, Isabelle; ...More
PUBLISHED: 2022, SOURCE: BIRTH DEFECTS RESEARCH, VOLUME: 114, ISSUE: 20
AUTHORS: Morris, Joan K.; Wellesley, Diana; Limb, Elizabeth; Bergman, Jorieke E. H.; Kinsner Ovaskainen, Agnieszka; Addor, Marie Claude; Broughan, Jennifer M.; Cavero Carbonell, Clara; Dias, Carlos M.; Echevarria Gonzalez de Garibay, Luis Javier; Gatt, Miriam; Haeusler, Martin; Barisic, Ingeborg; Klungsoyr, Kari; Lelong, Nathalie; Materna Kiryluk, Anna; Neville, Amanda; Nelen, Vera; O'Mahony, Mary T.; Perthus, Isabelle; ...More
PUBLISHED: 2022, SOURCE: BIRTH DEFECTS RESEARCH, VOLUME: 114, ISSUE: 20
INDEXED IN: Scopus WOS
Scopus WOS7
TITLE: Epidemiology of aplasia cutis congenita: A population-based study in Europe Full Text
AUTHORS: Coi, A; Barisic, I; Garne, E; Pierini, A; Addor, MC; Aizpurua Atxega, A; Ballardini, E; Braz, P; Broughan, JM; Cavero Carbonell, C; de Walle, HEK; Draper, ES; Gatt, M; Häusler, M; Kinsner Ovaskainen, A; Kurinczuk, JJ; Lelong, N; Luyt, K; Mezzasalma, L; Mullaney, C; ...More
PUBLISHED: 2022, SOURCE: JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY
AUTHORS: Coi, A; Barisic, I; Garne, E; Pierini, A; Addor, MC; Aizpurua Atxega, A; Ballardini, E; Braz, P; Broughan, JM; Cavero Carbonell, C; de Walle, HEK; Draper, ES; Gatt, M; Häusler, M; Kinsner Ovaskainen, A; Kurinczuk, JJ; Lelong, N; Luyt, K; Mezzasalma, L; Mullaney, C; ...More
PUBLISHED: 2022, SOURCE: JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY
INDEXED IN: Scopus WOS
Scopus WOS8
TITLE: Epidemiology of Pierre-Robin sequence in Europe: A population-based EUROCAT study Full Text
AUTHORS: Santoro, M; Coi, A; Barisic, I; Pierini, A; Addor, MC; Baldacci, S; Ballardini, E; Boban, L; Braz, P; Cavero Carbonell, C; de Walle, HEK; Draper, ES; Gatt, M; Haeusler, M; Klungsoyr, K; Kurinczuk, JJ; Materna Kiryluk, A; Lanzoni, M; Lelong, N; Luyt, K; ...More
PUBLISHED: 2021, SOURCE: PAEDIATRIC AND PERINATAL EPIDEMIOLOGY
AUTHORS: Santoro, M; Coi, A; Barisic, I; Pierini, A; Addor, MC; Baldacci, S; Ballardini, E; Boban, L; Braz, P; Cavero Carbonell, C; de Walle, HEK; Draper, ES; Gatt, M; Haeusler, M; Klungsoyr, K; Kurinczuk, JJ; Materna Kiryluk, A; Lanzoni, M; Lelong, N; Luyt, K; ...More
PUBLISHED: 2021, SOURCE: PAEDIATRIC AND PERINATAL EPIDEMIOLOGY
INDEXED IN: WOS
WOS9
TITLE: Epidemiology of congenital cerebral anomalies in Europe: a multicentre, population-based EUROCAT study
AUTHORS: Joan K Morris; Diana G Wellesley; Ingeborg Barisic; Marie Claude Addor; Jorieke E H Bergman; Paula Braz; Clara Cavero Carbonell; Elizabeth S Draper; Miriam Gatt; Martin Haeusler; Kari Klungsoyr; Jennifer J Kurinczuk; Natalie Lelong; Karen Luyt; Catherine Lynch; Mary T O'Mahony; Olatz Mokoroa; Vera Nelen; Amanda J Neville; Anna Pierini; ...More
PUBLISHED: 2019, SOURCE: ARCHIVES OF DISEASE IN CHILDHOOD, VOLUME: 104, ISSUE: 12
AUTHORS: Joan K Morris; Diana G Wellesley; Ingeborg Barisic; Marie Claude Addor; Jorieke E H Bergman; Paula Braz; Clara Cavero Carbonell; Elizabeth S Draper; Miriam Gatt; Martin Haeusler; Kari Klungsoyr; Jennifer J Kurinczuk; Natalie Lelong; Karen Luyt; Catherine Lynch; Mary T O'Mahony; Olatz Mokoroa; Vera Nelen; Amanda J Neville; Anna Pierini; ...More
PUBLISHED: 2019, SOURCE: ARCHIVES OF DISEASE IN CHILDHOOD, VOLUME: 104, ISSUE: 12
INDEXED IN: Scopus WOS
Scopus WOS10
TITLE: Epidemiology of achondroplasia: A population-based study in Europe Full Text
AUTHORS: Alessio Coi; Michele Santoro; Ester Garne; Anna Pierini; Marie Claude Addor; Jean Luc Alessandri; Jorieke E H Bergman; Fabrizio Bianchi; Ljubica Boban; Paula Braz; Clara Cavero Carbonell; Miriam Gatt; Martin Haeusler; Kari Klungsoyr; Jennifer J Kurinczuk; Monica Lanzoni; Nathalie Lelong; Karen Luyt; Olatz Mokoroa; Carmel Mullaney; ...More
PUBLISHED: 2019, SOURCE: AMERICAN JOURNAL OF MEDICAL GENETICS PART A, VOLUME: 179, ISSUE: 9
AUTHORS: Alessio Coi; Michele Santoro; Ester Garne; Anna Pierini; Marie Claude Addor; Jean Luc Alessandri; Jorieke E H Bergman; Fabrizio Bianchi; Ljubica Boban; Paula Braz; Clara Cavero Carbonell; Miriam Gatt; Martin Haeusler; Kari Klungsoyr; Jennifer J Kurinczuk; Monica Lanzoni; Nathalie Lelong; Karen Luyt; Olatz Mokoroa; Carmel Mullaney; ...More
PUBLISHED: 2019, SOURCE: AMERICAN JOURNAL OF MEDICAL GENETICS PART A, VOLUME: 179, ISSUE: 9
INDEXED IN: Scopus WOS
Scopus WOS