V. L. Malcarne
AuthID: R-00G-942
1
TITLE: The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial Full Text
AUTHORS: Nordlund, J; Henry, RS; Kwakkenbos, L; Carrier, ME; Levis, B; Nielson, WR; Bartlett, SJ; Dyas, L; Tao, L; Fedoruk, C; Nielsen, K; Hudson, M; Pope, J; Frech, T; Gholizadeh, S; Johnson, SR; Piotrowski, P; Jewett, LR; Gordon, J; Chung, L; ...More
PUBLISHED: 2021, SOURCE: TRIALS, VOLUME: 22, ISSUE: 1
AUTHORS: Nordlund, J; Henry, RS; Kwakkenbos, L; Carrier, ME; Levis, B; Nielson, WR; Bartlett, SJ; Dyas, L; Tao, L; Fedoruk, C; Nielsen, K; Hudson, M; Pope, J; Frech, T; Gholizadeh, S; Johnson, SR; Piotrowski, P; Jewett, LR; Gordon, J; Chung, L; ...More
PUBLISHED: 2021, SOURCE: TRIALS, VOLUME: 22, ISSUE: 1
INDEXED IN: 
Scopus 
WOS
Scopus WOS2
TITLE: The Scleroderma Patient-Centered Intervention Network Self-Management Program: Protocol for a Randomized Feasibility Trial
AUTHORS: Marie Eve Carrier; Linda Kwakkenbos; Warren R Nielson; Claire Fedoruk; Karen Nielsen; Katherine Milette; Janet Pope; Tracy Frech; Shadi Gholizadeh; Laura Hummers; Sindhu R Johnson; Pamela Piotrowski; Lisa Jewett; Jessica Gordon; Lorinda Chung; Dan Bilsker; Kimberly A Turner; Julie Cumin; Joep Welling; Catherine Fortune; ...More
PUBLISHED: 2020, SOURCE: JMIR RESEARCH PROTOCOLS, VOLUME: 9, ISSUE: 4
AUTHORS: Marie Eve Carrier; Linda Kwakkenbos; Warren R Nielson; Claire Fedoruk; Karen Nielsen; Katherine Milette; Janet Pope; Tracy Frech; Shadi Gholizadeh; Laura Hummers; Sindhu R Johnson; Pamela Piotrowski; Lisa Jewett; Jessica Gordon; Lorinda Chung; Dan Bilsker; Kimberly A Turner; Julie Cumin; Joep Welling; Catherine Fortune; ...More
PUBLISHED: 2020, SOURCE: JMIR RESEARCH PROTOCOLS, VOLUME: 9, ISSUE: 4
INDEXED IN: Scopus WOS
Scopus WOS3
TITLE: Assessing differential item functioning for the Social Appearance Anxiety Scale: a Scleroderma atient-centred Intervention Network (SPIN) Cohort Study
AUTHORS: Sophia J Sommer; Daphna Harel; Linda Kwakkenbos; Marie Eve Carrier; Shadi Gholizadeh; Karen Gottesman; Catarina Leite; Vanessa L Malcarne; Brett D Thombs;
PUBLISHED: 2020, SOURCE: BMJ OPEN, VOLUME: 10, ISSUE: 10
AUTHORS: Sophia J Sommer; Daphna Harel; Linda Kwakkenbos; Marie Eve Carrier; Shadi Gholizadeh; Karen Gottesman; Catarina Leite; Vanessa L Malcarne; Brett D Thombs;
PUBLISHED: 2020, SOURCE: BMJ OPEN, VOLUME: 10, ISSUE: 10
INDEXED IN: Scopus WOS
Scopus WOS4
TITLE: Assessing differential item functioning for the Social Appearance Anxiety Scale: a Scleroderma Patient-centred Intervention Network (SPIN) Cohort Study
AUTHORS: Sophia J Sommer; Daphna Harel; Linda Kwakkenbos; Marie Eve Carrier; Shadi Gholizadeh; Karen Gottesman; Catarina Leite; Vanessa L Malcarne; Brett D Thombs;
PUBLISHED: 2020, SOURCE: BMJ OPEN, VOLUME: 10, ISSUE: 10
AUTHORS: Sophia J Sommer; Daphna Harel; Linda Kwakkenbos; Marie Eve Carrier; Shadi Gholizadeh; Karen Gottesman; Catarina Leite; Vanessa L Malcarne; Brett D Thombs;
PUBLISHED: 2020, SOURCE: BMJ OPEN, VOLUME: 10, ISSUE: 10
INDEXED IN: WOS
WOS5
TITLE: Validation of the social interaction anxiety scale in scleroderma: A scleroderma patientcentered intervention network cohort study
AUTHORS: Gholizadeh, S; Kwakkenbos, L; Carrier, ME; Mills, SD; Fox, RS; Jewett, LR; Gottesman, K; Roesch, S; Thombs, BD; Malcarne, VL; Baron, M; Bartlett, SJ; Furst, D; Van Den Hoogen, F; Mayes, MD; Mouthon, L; Nielson, WR; Poiraudeau, S; Riggs, R; Sauve, M; ...More
PUBLISHED: 2017, SOURCE: Journal of Scleroderma and Related Disorders, VOLUME: 3, ISSUE: 1
AUTHORS: Gholizadeh, S; Kwakkenbos, L; Carrier, ME; Mills, SD; Fox, RS; Jewett, LR; Gottesman, K; Roesch, S; Thombs, BD; Malcarne, VL; Baron, M; Bartlett, SJ; Furst, D; Van Den Hoogen, F; Mayes, MD; Mouthon, L; Nielson, WR; Poiraudeau, S; Riggs, R; Sauve, M; ...More
PUBLISHED: 2017, SOURCE: Journal of Scleroderma and Related Disorders, VOLUME: 3, ISSUE: 1
INDEXED IN: Scopus
Scopus6
TITLE: Examination of the association of sex and race/ethnicity with appearance concerns: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort study
AUTHORS: Jewett, LR; Kwakkenbos, L; Carrier, ME; Malcarne, VL; Bartlett, SJ; Furst, DE; Gottesman, K; Mayes, MD; Assassi, S; Harcourt, D; Williamson, H; Johnson, SR; Körner, A; Steen, V; Fox, RS; Gholizadeh, S; Mills, SD; Molnar, JC; Rice, DB; Thombs, BD; ...More
PUBLISHED: 2016, SOURCE: Clinical and Experimental Rheumatology, VOLUME: 34
AUTHORS: Jewett, LR; Kwakkenbos, L; Carrier, ME; Malcarne, VL; Bartlett, SJ; Furst, DE; Gottesman, K; Mayes, MD; Assassi, S; Harcourt, D; Williamson, H; Johnson, SR; Körner, A; Steen, V; Fox, RS; Gholizadeh, S; Mills, SD; Molnar, JC; Rice, DB; Thombs, BD; ...More
PUBLISHED: 2016, SOURCE: Clinical and Experimental Rheumatology, VOLUME: 34
INDEXED IN: Scopus
Scopus7
TITLE: The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: Protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context Full Text
AUTHORS: Kwakkenbos, L; Jewett, LR; Baron, M; Bartlett, SJ; Furst, D; Gottesman, K; Khanna, D; Malcarne, VL; Mayes, MD; Mouthon, L; Poiraudeau, S; Sauve, M; Nielson, WR; Poole, JL; Assassi, S; Boutron, I; Ells, C; Van Den Ende, CHM; Hudson, M; Impens, A; ...More
PUBLISHED: 2013, SOURCE: BMJ Open, VOLUME: 3, ISSUE: 8
AUTHORS: Kwakkenbos, L; Jewett, LR; Baron, M; Bartlett, SJ; Furst, D; Gottesman, K; Khanna, D; Malcarne, VL; Mayes, MD; Mouthon, L; Poiraudeau, S; Sauve, M; Nielson, WR; Poole, JL; Assassi, S; Boutron, I; Ells, C; Van Den Ende, CHM; Hudson, M; Impens, A; ...More
PUBLISHED: 2013, SOURCE: BMJ Open, VOLUME: 3, ISSUE: 8
INDEXED IN: Scopus 
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